Every parents nightmare is anything bad happening to their child. To be faced with the prospect of a terminal or potentially terminal illness affecting your child can be somewhat overwhelming. Many parents who find themselves in this situation feel they don’t don’t know where to start, they are overwhelmed emotionally and feel completely un-prepared to face the prospect of their child dying.
It can sometimes take a while from when your child begins to show symptoms of illness to get a diagnosis for your child. However many parents have guessed by the time of diagnosis that they might be facing a long hard battle ahead.
Although you have been told that your child may not live to see their teenage or adult years, it might be really difficult for you to process the information, and even harder for you to begin to accept the diagnosis and prognosis as fact.
There is no right or wrong way to deal with such a devastating blow, each family will deal with it in their own unique way. It is vital that the health care professionals dealing with your child’s illness does so in a way that caters for your families needs.
Here at the Happy Smile Children’s Charity we understand how important it is that you are able to speak about your child’s diagnosis privately and have it explained to you in simple easy to understand language. It is never going to be easy to absorb all the information given to you while you are in shock, information needs to be given in a way that the whole family can understand and in a way that makes you know the challenges and all possible outcomes.
It is crucial that both you and your child fully understand the situation and what may be the ultimate outcome. It is the only way to be able to come to terms with the news and also to be able to support each other through what is the most difficult time of your lives.
Living with a child that is seriously ill has repercussions not only emotionally but practically aswell. You need to explain the situation fully to siblings and in a way that they can grasp.
You should make sure you look after yourself too, if you feel like you are struggling to cope make an appointment with you GP as soon as possible.